You think you’re having a bad hair day!!

Try coping with scalp psoriasis!! I guarantee you will want to pull your hair out!!

My scalp is covered with Psoriasis at the moment and its driving me CRAZY!!!

I am so tempted to shave my hair off, I just can’t deal with the itching this time round, not to mention the snowflakes that keep falling off my head.

No chance of me getting lost or robbing a bank, I leave to much DNA evidence hahaha!!!

I am due a Stelara injection in a few weeks, couldn’t come faster I need my fix!!

Flare up started a few weeks ago and my scalp is ooouuuuccchhhhhhhh, you get my drift its hurting a tad! My usual treatments are not working at all this time round, but I’m still trying to calm it down. Cocoasis and Dovobet gel please please do your thing and help my head!

Guess it’s time to rock some hats until I stop snowing 😛

On a positive note here’s me having fabulous hair days!!!!!

Rena Phone Nov 13 403  Rena phone july 2013 035 rena may 21 365

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Bouncing off the walls in pain!

So I thought I had mastered this and had things under control!

After many years my skin is at it’s best with the help of my buddy Stelara. Injections have never bothered me and to be honest I prefer it to taking tablets, weird I know! Guess I’m immune to needles with the amount of blood tests I’ve had over the years. I have to say we are getting on just fine! (I’ll fill you in on that on another day).

So where was I? Oops lost track…that’s it, bouncing of the walls in pain arrrgggghhh!! So, as the Psoriasis wasn’t enough, Psoriatic Arthritis decided to pay me a visit and decided to stay!

Not going to lie its driving me crazy and really getting me down. The pain is ridiculous. Currently it is affecting my legs, back and hands. It started in 2012 but flared up really badly at the end of 2013 and since then its been downhill.

My back is off the hook today its hurting like mad, to the point I cant even touch my back. Its rock solid and stiff 😦  I’m sat here with two hot water bottles to try and get some comfort not to mention popping a few pills, Naproxen.

I had an MRI scan a few weeks back and am waiting on the result to see what the hell is going on! My consultant is being cautious before trying another treatment.

I have tried a few options treatment wise, but nothing has helped. Methotrexate, Spinal infusion and Physo are all a dead end.

The thing that really gets to me about the PSA, is I can feel myself deteriorating. Every day, I feel that little bit weaker and the pain getting worse…I have no doubt things will get bad before they get better!

Until then I’lll keep rocking with my walking stick….Obviously, I had to get one that reflects my style 🙂 PhotoGrid_1407945950971

The Roller-coaster

OCT 2011

This journey that I’m on is most definitely one crazy ride! Ups, downs, twist and loops enough to drive anyone crazy lol!

I have suffered with P for 24 years and counting. I can finally say I have accepted its here to stay and we are best friends, with bitter sweet moments!

Psoriasis has made me the person I am today, I can say hand on heart it has had a massive impact on my personality and the way I view life. I guess I see things in a complete different light and am grateful for even the smallest of things.

For so many years I suffered in silence and kept a lot of stuff to myself. Never shared how bad I was feeling or how much it really was hurting me. When I was diagnosed with P there wasn’t much information or support and it was a lonely journey.

I am lucky to have great family and friends who have been there for me and more so since I opened the door and let them into my world to take a glimpse of how hard it really is.

After making the film it really inspired me to help other sufferers out there and that has been my mission since.

So to all my P warriors out there that are on this roller-coaster lets ride together!!!