Psoriasis: Under The Skin — October 18, 2015

Psoriasis: Under The Skin

In the recent months I have been working on various projects, one of them was making a short film with Leo Pharma.

This film highlights the feelings and thoughts of Psoriasis patients

Psoriasis: Under The Skin

It is so important to create awareness, through education we can change the way society views something they know very little about.

Life’s an Itch — September 4, 2015

Life’s an Itch

Does Psoriasis itch? Yes, and can be very distressing.

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So why am I talking itch? Well, many healthcare professionals believe it doesn’t and has low or no impact at all. They obviously have no idea! (I have been tempted to throw itching powder at a few of my doctors in the past who have dismissed the itch)

For me the itching can get really bad leaving me feeling exhausted and stressed out. On many occasions I have ended up scratching so hard that I have ripped my skin open, with blood every where, not to mention triggering trauma to my skin causing a flare up.

So when I was asked to take part in this fantastic campaign I was more than happy too.

Life’s an Itch  is a campaign bought together by The Psoriasis Association and Celgene, also supported by The British Dermatological Nursing Group.

“A campaign to raise awareness about the real impact of itch for people with psoriasis”

I was asked to submit words that describe what ‘Itch’ means to me, along with other Psoriasis Bloggers…and this amazing piece of art work was produced.

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Get involved with Life’s an Itch and create more art work like this!

Talking helps! — August 24, 2015

Talking helps!

The day I opened up and explained how I felt living with psoriasis and the impact it was having on my life, was the day I felt free!

Since then I decided I would do all that I could to help others. Educating society is a must, awareness is incredibly important.

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Quality Care — August 20, 2015

Quality Care

Wowsa time just seems to be flying by! I have slightly neglected my blog as I have been busy working on some exciting projects and have been meaning to tell you all about them…

Quality Care is for a platform designed by Leo Pharma to bring patients, family, friends and healthcare professionals information, advise and support.

We have all spent hours on the net sourcing valid and trust worthy information, here you can do exactly that. All the information advise and support has been thoroughly checked.

Within quality care there is the Bloggers Universe, I am a resident blogger for this section, along with three other bloggers. We write blogs ranging from topics such as food, fashion makeup and lifestyle. When I was asked to be part of this I said yes straight away!  Its an amazing opportunity to be part of such a great platform. Here is one of my blog post Keeping skin moisturised for longer

Meet the rest of the bloggers, who also have there own blogs

Jess – Jessica and psoriasis

Simon – My Skin and I

Helen – The Flaky Fashionista



If your one for downloading the latest App, then make sure MyPso is your next download. The app allows you to track and make notes on your psoriasis. You can log triggers and symptoms, take photos with the option to download the data to pdf form for you to take to your appointments and have more detailed discussion. I know many times I have gone and forgotten to mention something or by the time my appointment is due the flare up has calmed down, this way you can take photos and show your doctor.

Back in June I was invited to speak about my journey with psoriasis, along with Simon at the launch event for Quality Care. Its so refreshing to see how forward things have com. Being able to have open discussions and creating awareness as well as contributing to such great platforms of support and advise. At the event we were also joined by Dr Bewley and Dr Shah who spoke about the effects psoriasis has psychologically, it was nice to see how understanding and caring they were. Putting it out there that psoriasis is not just a skin thing!

Pso it all started when I was 13 — July 9, 2015

Pso it all started when I was 13

It started when I was 13 years old, I felt small spots on my upper back and neck they were raised and red, almost like a heat rash. I showed my mum as I couldn’t really see properly; she too thought it was heat rash. Within days it speared to my elbows and knees and we knew something wasn’t right as it no longer looked like a rash.

The spots had started to pop and had a ring of dry pealing skin and it was incredibly itchy. My parents took me to see our GP straight away as it started to spread on my legs and arms. I was diagnosed almost straight away, my GP had a dermatology background and soon as she saw my skin said it was psoriasis. She did however ask another doctor to come and have a look to confirm the diagnosis. I still remember them saying “you have psoriasis, and there is no cure you have this for life!” 

I remember feeling numb and not quite understanding what they were saying, almost like I couldn’t hear what they were saying to my parents. It still haunts me to this day, hearing I have a condition that has no cure.

I was referred to a dermatologist straight away, by the time my appointment came through I was covered head to toe in psoriasis. To be honest the wait wasn’t that long, a few weeks at most.

I couldn’t understand what was going on; my skin was on fire and hurting like made not to mention how itchy it was. But I kept a lot of this to myself; I didn’t know how to express how I was feeling. Soon this way of dealing with it became normal. I put up a front and carried on like nothing was wrong!

I was a young girl when my whole body was covered in Psoriasis. One minute I was fine, happy carefree and the next it was all out of control and I bottled it all up. I became withdrawn behind closed doors, crying myself to sleep every night. Hours and hours questioning myself “what have I done wrong, why won’t this go”

At the time I didn’t realise but looking back now, I had a temper that was volcanic. I would break out in a rage and punch my bedroom walls, break glasses, my insides would ache in anger but I never let anyone see this side of me. Occasionally I slipped up and my parents would notice I was not my happy bubbly self and tried asking but I brushed it off.

One day I just couldn’t hide it from them and cried and cried, screaming and saying it hurts and I want it to go away. They were so upset to see me this way and I couldn’t handle seeing them so upset, so I decided from that day onwards I would never show them I can’t cope. But I knew it wasn’t really working I could see it in their eyes they worried. I was hurting and in pain and I wanted to protect them and just wanted them to see the daughter they knew before all this, chatterbox full of happiness and smiles.

School was really hard.  I was bullied, called names, rice krispy, pizza face things like that. My face was covered in psoriasis, not like I could hide it! For some reason it didn’t rise to it, I was too tired fighting to cope with psoriasis, and had no energy to deal with the comments.

I always feel really disappointed in my teachers; I received no support from them at all. When I started high school I was fine, then all of a sudden I’m covered; they can see, but never once did they ask if I was ok. Oh the excuses I made up not to do PE and Dance, you would have thought that this might have set off alarm bells and prompt them to find out what’s going on!

The years just seem to pass by with no signs of the psoriasis clearing. Part of me held on to hope one day I would wake up and I would have clear skin, the pain and suffering would end and I could live the rest of my life normally…that day hasn’t come!

I have server plaque psoriasis and it has never fully cleared, I have tried so many treatments, topical, light treatment, systemic, biologic and also alternative therapies like acupuncture, reflexology, diets, home remedies the list goes on, and I guess it won’t stop there….

In 24 years of having psoriasis I have only had few months here and there of almost clear skin. I have never managed to clear all of it. So far the best treatment that I have done well on is the biologic injections. Currently I am on Stelara but am at the point where I have become immune and starting to flare up again. I am having discussions with my consultant to see what available next is, fingers crossed!

My biggest fear is having a massive flare up as I am not strong as I used to be in fighting it off. My body is exhausted and it really takes it out of me.

I have come a long way from the dark days where I closed up and wouldn’t share with anyone how I feel and what it’s like to have a chronic condition. I now focus on helping others not to suffer in silence.




On Saturday 9th May 2015 Psoriasis Association held there annual conference at the beautiful Whittlebury Hall in Northamptonshire.

It was a pleasure to be invited as a guest speaker at the conference.


I spoke about co-management of Psoriasis and Psoriatic Arthritis. Diyen my partner came along too, he filmed me speaking, and I have to say it always hits home harder when I hear myself talking about my journey. I know it’s all happening but I guess because I am living the moments every day I forget how tough things can really be sometimes. Maybe it just goes to show it is who I am and the way I deal with these chronic conditions is normal now.

But I always question “what is normal” everything is always changing and I am exhausted trying to keep up with it all.

Anyway back to the conference, this was the first one I have attended and I have to say it was very good, lots of new information and advice. Also an opportunity to meet other sufferers, share advice and experiences.

It was great to catch up with Victoria, founder of Psoriasense, we have had the pleasure working on a few projects together.

Some interesting topics were covered

  • Social media
  • Treatment decision making and psoriasis
  • What role does diet play
  • Co-management of psoriasis and psoriatic arthritis

When I was first diagnosed with P, 24 years ago information was very little and no support groups at all. It’s refreshing to see how much support there is out there now. A big thank you has to go out to those who suffer and share their stories and create awareness.


Diyen knows a lot about the conditions and how hard things have been for me, he also found the information extremely beneficial. He also struggled to understand why so much is missed by consultants and why referrals are not made by GP’s, actually he was extremely annoyed! Since then he has been asking me a lot of questions, I think his making sure I have all the support I need.

If you haven’t had a chance to attend the conference I highly recommend you do! I know many of us touch base via social media and the Psoriasis Association Facebook group but meeting in person would be great. I always look forward to meeting fellow warriors!

Oh and the goodie bag is amazing, some great products to try out!

Some great samples to try
Psoriasis is not contagious, awareness is! — April 29, 2015
You think you’re having a bad hair day!! — April 17, 2015

You think you’re having a bad hair day!!

Try coping with scalp psoriasis!! I guarantee you will want to pull your hair out!!

My scalp is covered with Psoriasis at the moment and its driving me CRAZY!!!

I am so tempted to shave my hair off, I just can’t deal with the itching this time round, not to mention the snowflakes that keep falling off my head.

No chance of me getting lost or robbing a bank, I leave to much DNA evidence hahaha!!!

I am due a Stelara injection in a few weeks, couldn’t come faster I need my fix!!

Flare up started a few weeks ago and my scalp is ooouuuuccchhhhhhhh, you get my drift its hurting a tad! My usual treatments are not working at all this time round, but I’m still trying to calm it down. Cocoasis and Dovobet gel please please do your thing and help my head!

Guess it’s time to rock some hats until I stop snowing 😛

On a positive note here’s me having fabulous hair days!!!!!

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Bouncing off the walls in pain! — March 5, 2015

Bouncing off the walls in pain!

So I thought I had mastered this and had things under control!

After many years my skin is at it’s best with the help of my buddy Stelara. Injections have never bothered me and to be honest I prefer it to taking tablets, weird I know! Guess I’m immune to needles with the amount of blood tests I’ve had over the years. I have to say we are getting on just fine! (I’ll fill you in on that on another day).

So where was I? Oops lost track…that’s it, bouncing of the walls in pain arrrgggghhh!! So, as the Psoriasis wasn’t enough, Psoriatic Arthritis decided to pay me a visit and decided to stay!

Not going to lie its driving me crazy and really getting me down. The pain is ridiculous. Currently it is affecting my legs, back and hands. It started in 2012 but flared up really badly at the end of 2013 and since then its been downhill.

My back is off the hook today its hurting like mad, to the point I cant even touch my back. Its rock solid and stiff 😦  I’m sat here with two hot water bottles to try and get some comfort not to mention popping a few pills, Naproxen.

I had an MRI scan a few weeks back and am waiting on the result to see what the hell is going on! My consultant is being cautious before trying another treatment.

I have tried a few options treatment wise, but nothing has helped. Methotrexate, Spinal infusion and Physo are all a dead end.

The thing that really gets to me about the PSA, is I can feel myself deteriorating. Every day, I feel that little bit weaker and the pain getting worse…I have no doubt things will get bad before they get better!

Until then I’lll keep rocking with my walking stick….Obviously, I had to get one that reflects my style 🙂 PhotoGrid_1407945950971

The Roller-coaster — February 20, 2015

The Roller-coaster

OCT 2011

This journey that I’m on is most definitely one crazy ride! Ups, downs, twist and loops enough to drive anyone crazy lol!

I have suffered with P for 24 years and counting. I can finally say I have accepted its here to stay and we are best friends, with bitter sweet moments!

Psoriasis has made me the person I am today, I can say hand on heart it has had a massive impact on my personality and the way I view life. I guess I see things in a complete different light and am grateful for even the smallest of things.

For so many years I suffered in silence and kept a lot of stuff to myself. Never shared how bad I was feeling or how much it really was hurting me. When I was diagnosed with P there wasn’t much information or support and it was a lonely journey.

I am lucky to have great family and friends who have been there for me and more so since I opened the door and let them into my world to take a glimpse of how hard it really is.

After making the film it really inspired me to help other sufferers out there and that has been my mission since.

So to all my P warriors out there that are on this roller-coaster lets ride together!!!